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10 Year Follow-Up – Progress

 

Heatmap of the Head and Neck 5000 10 Year Questionnaire respondentsImage by Google, GeoBasis-DE/BKG

 

We have so far received over 840 of the 10 year follow up questionnaires. These have been scanned in, and processing and data analysis has already begun.

We are preparing to send out reminder packs to those who haven’t had a chance to respond yet, these will contain new questionnaires so don’t worry if you have mislaid your original.

A massive thank you everyone who has returned a questionnaire so far, the information you provide is invaluable to further our understanding of the impact head and neck cancer has on people’s lives.

 

Questionnaire Feedback

The questionnaires continue to come back in, so far we have received over 800 and we’ve had lots of positive feedback.

A few people have queried why we ask about finance and work in the questionnaire, these questions help us to find out which groups of people are affected by head and neck cancer, and how the impact of cancer affects people.

If you have any questions you would like to discuss with us please don’t hesitate to get in touch.

We have contact form which you can use. Alternatively you can call us on 0117 3429531.  If we aren’t able to answer the phone leave a message and we will get back to you.

Well read!

We have been notified that the journal Psycho-Oncology has listed a paper using Head and Neck 5000 data as one of their top 10 most-cited papers.

Well done to all involved!

Associations between markers of social functioning and depression and quality of life in survivors of head and neck cancer: Findings from the Head and Neck Cancer 5000 study

#TopCitedArticle.

British Association of Head and Neck Oncologists (BAHNO) Annual Scientific Meeting 2024We were proud to represent HN5000 at the British Association of Head and Neck Oncologists (BAHNO) Annual Scientific Meeting 2024 in London. This was attended by the full scope of UK multidisciplinary professionals involved in the diagnosis, treatment and rehabilitation of patients with head and neck cancer, in addition to patient and public representatives. We were delighted to see that HN5000 data was included in a wide range of research projects presented, and utilised by many different disciplines. It was the perfect event to launch our 10 year follow up study.

Scanning of our histopathology slides

We’re currently working hard on our digital histology imaging project, which is being funded by the Showering Trust at Southmead Hospital in Bristol. We are creating a collection of more than 5000 histology images. These images show the detailed structure of tumours, as well as common studies on biomarkers found in tissues. The digital library of histopathological images will be directly connected to our HN5000 databases, which store information about diseases and their patterns. This means we are able to easily share data on diseases and tissue biomarkers with researchers.